Each year, the digestive disease national coalition puts on an event in Washington, D.C. In March. It's a two day event where patients, doctors, and other representatives get together and speak at the house and senate. Together, we all advocate for better healthcare. Click here to read a recap of our PR director Samantha's first experience … Continue reading DDNC 2019
9/29/17 PRESS RELEASE HEARING: #SubHealth to Review Patient Access to Investigational Drugs NEXT WEEK https://energycommerce.house.gov/news/press-release/hearing-subhealth-review-patient-access-investigational-drugs-next-week/ WASHINGTON, DC – The Subcommittee on Health, chaired by Rep. Michael C. Burgess, M.D. (R-TX), announced a hearing for Tuesday, October 3, 2017, at 10:15 a.m. in room 2322 of the Rayburn House Office Building. The hearing is entitled, “Examining Patient Access to … Continue reading PRESS RELEASE: #SubHealth to Review Patient Access to Investigational Drugs NEXT WEEK
TPN is a big part of life for many people with gastroparesis.
Happy TPN/HPN awareness week! This week, the OLEY foundation recognizes August 7-11 to help spread information and awareness of TPN/HPN. (TPN is sometimes called HPN, which stands for HOME Parenteral Nutrition. They’re considered the same thing). This week, I hope to share as much as I can about TPN, and where to find information and resources for those who are starting TPN, know someone who relies on it, or simply wants to know more.
Being on TPN at first, besides being scary, was isolating. I felt very different, and I wasn’t sure how to navigate my life. I started out being on TPN 12 hours a day. That meant if I wanted to go to a friends, out to dinner, out to a movie, or anything of the sort, I needed to go prepared. At first, the idea of being away from home during that time was daunting. All the…
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This message comes from OLEY.org - enriching the lives of those living with home intravenous nutrition. This is an extremely important time to be engaged! We will be sending alerts periodically, but posting updates to oley.org/Legislation frequently. Stay tuned for updates on this and other important legislative issues. ACTION ALERT Ask Senators to vote NO … Continue reading ACTION ALERT!
by Nancy Brown for G-PACT.org YOU ARE NOT ALONE Gastroparesis (GP) is one of several digestive motility disorders that impact the body’s ability to digest food. Severity ranges from mild GP, where the disease can be managed by diet, to severe, requiring a feeding tube in order for the body to process nutrition. There is … Continue reading 5 Important things to know if you are Newly Diagnosed with Gastroparesis
This article from David Wilson of Itemlive.com introduces a young man named Andrew Billeveau. See the article where Andrew talks about his gastroparesis and how to raise money and awareness he took part in The Pie Face Challenge article. ! The article mentions G-PACT and our own Operations Director Colleen Beener. Visit G-PACT's own Pie Face Challenge on … Continue reading The PIE FACE CHALLENGE
Patient Alert: In a much more rapid fashion than expected, the House of Representatives is currently voting on a final version of the 21st Century Cures Act. Though certainly only representing an initial foundation, the Act is the broadest effort in the fight for FDA reform that I have seen in nearly 25 years. … Continue reading URGENT: 21st Century Cures Act needs your support RIGHT NOW