What I Want People to Know About Living With Gastroparesis

I began a journey that forever changed my life when I was diagnosed with gastroparesis (GP) and chronic intestinal pseudo-obstruction (CIP). Over the years, I’ve been on tube feedings and TPN (IV nutrition). I lost all of my veins for central lines. The doctors at my local hospital had no way to feed me. I … Continue reading What I Want People to Know About Living With Gastroparesis

FDA Meeting on Compounding Domperidone

On October 28, 2015 there was an FDA meeting to discuss the request from the Pharmacy Compounding Advisory Committee (PCAC) to allow compounding pharmacies in the United States to compound domperidone.    Below are notes from that meeting. The FDA presented information that, in the past 6 years in the United States, 7500-11600 prescriptions were written … Continue reading FDA Meeting on Compounding Domperidone

Final Report to the FDA

Patient Powered Drug Development: Platform For Engaging Everyone Responsibly Gastroparesis-Patient Association for Cures and Treatments (G-PACT) Advocacy Organization Engagement September 9, 2015 For Delivery To: The Food and Drug Administration (FDA) Prepared By: Cyan James, Genetic Alliance Sharon F. Terry, Genetic Alliance Rex Edwards Jim Sliney Jr., G-PACT Contact: Genetic Alliance 4301 Connecticut Ave NW … Continue reading Final Report to the FDA

Communicating with your Doctor

A beginner's guide to understanding medical terminology, Jim Sliney Jr, November 2015 I have spent almost 25 years working in medicine as a Medical Assistant. I’ve worked in several different departments, doing both clinical and research work. Thousands of patients and hundreds of healthcare workers later, I have learned some important lessons. Take those lessons and … Continue reading Communicating with your Doctor

Paul Sylvester

Every GPer has a different story.  My 'virtual GP family' ranges from those spending many more days in hospitals than their homes to those who flair only every couple of years, from amputees and tubies to those who run marathons or compete in talent pageants, and everything in between. I'm  one of the 'lucky/blessed ones'!...GP … Continue reading Paul Sylvester