What I Want People to Know About Living With Gastroparesis

I began a journey that forever changed my life when I was diagnosed with gastroparesis (GP) and chronic intestinal pseudo-obstruction (CIP). Over the years, I’ve been on tube feedings and TPN (IV nutrition). I lost all of my veins for central lines. The doctors at my local hospital had no way to feed me. IContinue reading “What I Want People to Know About Living With Gastroparesis”

FDA Meeting on Compounding Domperidone

On October 28, 2015 there was an FDA meeting to discuss the request from the Pharmacy Compounding Advisory Committee (PCAC) to allow compounding pharmacies in the United States to compound domperidone.    Below are notes from that meeting. The FDA presented information that, in the past 6 years in the United States, 7500-11600 prescriptions were writtenContinue reading “FDA Meeting on Compounding Domperidone”

Final Report to the FDA

Patient Powered Drug Development: Platform For Engaging Everyone Responsibly Gastroparesis-Patient Association for Cures and Treatments (G-PACT) Advocacy Organization Engagement September 9, 2015 For Delivery To: The Food and Drug Administration (FDA) Prepared By: Cyan James, Genetic Alliance Sharon F. Terry, Genetic Alliance Rex Edwards Jim Sliney Jr., G-PACT Contact: Genetic Alliance 4301 Connecticut Ave NWContinue reading “Final Report to the FDA”

Communicating with your Doctor

A beginner’s guide to understanding medical terminology, Jim Sliney Jr, November 2015 I have spent almost 25 years working in medicine as a Medical Assistant. I’ve worked in several different departments, doing both clinical and research work. Thousands of patients and hundreds of healthcare workers later, I have learned some important lessons. Take those lessons andContinue reading “Communicating with your Doctor”