Each year, the digestive disease national coalition puts on an event in Washington, D.C. In March. It's a two day event where patients, doctors, and other representatives get together and speak at the house and senate. Together, we all advocate for better healthcare. Click here to read a recap of our PR director Samantha's first experience … Continue reading DDNC 2019
Not long ago, we asked our GP community to share what they are thankful for. When living with chronic illness, it can get easy to see the struggles, but it’s important to share our victories, and what we’re thankful for. Here is what the community had to say: I am thankful for my good days … Continue reading Season of Thanks
Dehydration is a common occurrence for those who have gastroparesis, and can be difficult to deal with. Pact Blog writer Nancy writes about what exactly dehydration is, and what you can do about it! Gastroparesis patients frequently suffer from episodes of vomiting and/or diarrhea, depending on symptoms. These episodes can literally leave you feeling exhausted. … Continue reading GP & Dehydration
In honor of HPN Awareness week, our editor Samantha shares some of her life on TPN, and what it was like. Read her story below!
Two years. It’s been two years now on TPN. That’s 730 bags of TPN! I don’t even want to know how many needles or syringes were used in that time.
I was terrified when this all started. I remember the months leading up to the start of TPN. So many days I was afraid to sleep feeling like I wasn’t going to wake up. I felt my body shutting down. I was malnourished, tired, and no matter how much I wanted to keep fighting, it was becoming more and more obvious my body wasn’t able to keep up anymore.
I remember telling my endocrinologist I thought I was going to die. I was leaving the hospital after much needed calcium infusions and fluids, and my blood pressure was so low, the nurses didn’t want me to leave. My bloodwork was atrocious. My body was dragging and I was barely functioning.
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What is H.R. 1187 - Functional Gastrointestinal and Motility Disorders Research Enhancement Act of 2017? Pact Blog writer Nancy explains just what this bill is, and how you can get involved! You may have noticed posts on social media about H.R. 1187. This bill is important for those of us with gastrointestinal diseases and is … Continue reading What is H.R. 1187?
Malnutrition Awareness Week Date: September 24-28, 2018 Website: http://www.nutritioncare.org/maw Contact Information: (301) 587-6315, email@example.com Join the American Society for Parenteral and Enteral Nutrition (ASPEN) September 24-28, 2018 for their seventh annual Malnutrition Awareness Week™. Malnutrition Awareness Week is a multiorganizational, multi-pronged campaign created by ASPEN to: • Educate healthcare professionals to identify and treat for … Continue reading Malnutrition Awareness Week
Interested in working on your advocacy? Read below what IFFGD is doing this month and how you can help! During the month of September, join IFFGD and advocates across the nation in making your voice heard in Washington! Write a letter or draw a picture sharing your personal experience with a chronic gastrointestinal (GI) illness and … Continue reading Reach out to Congress with IFFGD