Public Meeting on Functional GI Disorders Patient-Focused Drug Development

Public Meeting on Functional GI Disorders Patient-Focused Drug Development The FDA meeting for gastroparesis as part of their Patient Focused Drug Development program has been scheduled for Monday May 11th from 1:00 - 5:00 PM.  Anyone who can attend, should. For more info: http://www.fda.gov/ForIndustry/UserFees/PrescriptionDrugUserFee/ucm430885.htm

Patient Spotlight: Debbie Kinder

Hi, my name is Debbie Kinder. I have one son age 24 who is in the army and a student at Marshal University in Huntington WV.  I am 48 years young. I was born and raised in San Diego California. I hope to move back there some day. Or at least a warmer dry climate. … Continue reading Patient Spotlight: Debbie Kinder

Fecal Transplants

Writer: Sam Hyde, M.S. PhD, MPH One of our members recently saw a TV show PBS series called 'Second Opinion' where fecal transplants were discussed as having a 91% success rate for curing C-Diff. Since people with digestive tract issues many times have problems with C-Diff, we asked our Science Advisor, Dr. Sam Hyde, to … Continue reading Fecal Transplants

Update to the Status of HR 842

Writer: Brandy Gresock and The Pact If you have been diagnosed with Gastroparesis, or any other digestive motility disorder, then you have probably noticed that the treatments in the US are slim to none.  How amazing would it be if there were government bills passed to increase awareness and research? On February 26, 2013, Congressman … Continue reading Update to the Status of HR 842

2015 DDNC Public Policy Forum March 1st & 2nd in Washington, DC

REMINDER!!! Lobby on Capitol Hill for Digestive Tract Paralysis! The 2015 DDNC Public Policy Forum will be held on Sunday, March 1st and Monday, March 2nd in Washington, DC. Join patients, health care providers, industry representatives, lawmakers and their legislative staff for two days of educational programs, legislative updates and advocacy training. You will visit … Continue reading 2015 DDNC Public Policy Forum March 1st & 2nd in Washington, DC