Clinical Nutrition Week, Orlando FL 2/18-2/21

Clinical Nutrition Week 2017 in Orlando, FL

The American Society for Parenteral and Enteral Nutrition’s (ASPEN) Clinical Nutrition Week (CNW17) is a can’t miss conference for nutrition support professionals. Over 2,000 clinicians and researchers will gather for four days of educational and research programs aimed at improving patient care, on February 18-21, 2017 at the Orlando World Center Marriott in Orlando, Florida.

CNW17 features pre-conference courses, late-breaking research, and opportunities to meet nutrition support professionals from around the world. The pre-conference course, Functional

Medicine: The Optimal Approach to Intestinal Disorders, will provide an introduction to functional medicine and cover topics such as Case-Based Functional Nutrition Approach in a Nutrition Support Patient with Gastroparesis.

 

Visit the official CNW17 site for additional program information and to register.

The PIE FACE CHALLENGE

This article from David Wilson of Itemlive.com introduces a young man named Andrew Billeveau. See the article where Andrew talks about his gastroparesis and how to raise money and awareness he took part in The Pie Face Challenge article. !

web-lorenz_161229_002-695x393
Andrew Billeveau post pie!      [photo by Mark Lorenz from the Itemlive.com article]
The article mentions G-PACT and our own Operations Director Colleen Beener.

Visit G-PACT’s own Pie Face Challenge on Facebook.

The PIE FACE CHALLENGE builds on the popularity of the ALS Ice Bucket challenge of 2015. The rules are simple:

  1. make a photo or video of you smashing a cream pie in your face!
  2. challenge your friends to do the same
  3. make a donation to G-PACT.org
  4. spread the word

gp-pie-face-challenge-flyer

Malnutrition Awareness Week -ASPEN

Malnutrition Awareness Week TM

Date: September 26 – 30, 2016

Website: http://www.nutritioncare.org/maw

Contact Information: (301) 587-6315, info@nutritioncare.org
Join the American Society for Parenteral and Enteral Nutrition (ASPEN) September 26 – 30, 2016 for their fifth annual Malnutrition Awareness Week™.

The purpose of this week is to raise awareness in healthcare professionals to consider assessing and intervening earlier and for the pubic to realize that they need to ask about their nutrition status and advocate for optimal nutrition care as much as possible.
In 2009, ASPEN recognized a need for greater awareness of malnutrition, which is common in hospitalized patients in the United States and is associated with unfavorable outcomes including higher infection rates, poor wound healing, longer lengths of stay, and higher frequency of readmission. Not unexpectedly, these outcomes are associated with increased costs. In some studies, 30-50% of patients become malnourished, often during a hospital stay.
The 2016 week is scheduled to have three webinars* and a chat with the experts

 Improving Malnutrition from the Physician Perspective*

 Combating Malnutrition in Spanish Speaking Population: Available Programs and Resources*

 Malnutrition Interventions and Programs for Older Adults*

 Aging Does Not Matter: Malnutrition in the Aging Population

Visit the official Malnutrition Awareness Week site to register or for more information about the week. Participants will receive continuing education credits. ASPEN is accredited to provide medical, pharmacy, nursing and dietetic credits.

 

G-PACT is sharing this post because we collaborate with ASPEN

 

 

 

Public Meeting on Functional GI Disorders Patient-Focused Drug Development

On May 22, 2015, the FDA obtained patient input on the impact of functional GI disorders on daily life and patients’ views on currently available therapies to treat the functional GI disorders, such as irritable bowel syndrome, gastroparesis, chronic persistent symptomatic gastroesophageal reflux despite standard therapeutic interventions, and chronic idiopathic constipation.  G-PACT was there!

For those who were unable to attend or participate via the webcast, the meeting was recorded and may be viewed here:

Part 1:

https://collaboration.fda.gov/p3xfprr0hlr/?launcher=false&fcsContent=true&pbMode=normal

Part 2:  https://collaboration.fda.gov/p5lp2oxt3wy/?launcher=false&fcsContent=true&pbMode=normal

To read the transcript of the meeting, go to  http://www.fda.gov/downloads/ForIndustry/UserFees/PrescriptionDrugUserFee/UCM448905.pdf

Functional GI Disorders Patient-Focused Drug Development Public Meeting

In less than 2 months, on May 11th, the FDA is holding a public meeting and an opportunity for public comment on Patient-Focused Drug Development for functional gastrointestinal (GI) disorders, including irritable bowel syndrome, gastroparesis, chronic persistent symptomatic gastroesophageal reflux despite standard therapeutic interventions, and chronic idiopathic constipation.

Even if you cannot attend, you can make your voice heard! You can join the meeting via webcast by registering Here.

In addition, you can submit formal comments by going HERE. Click on the green button SUBMIT A FORMAL COMMENT to provide your answers to the questions listed below. This is something EVERYONE can do to help the FDA gather the information they need.

Topic 1: Disease Symptoms and Daily Impacts That Matter Most to Patients

Have you received a diagnosis of a functional GI disorder from a health care provider? If so, please state the condition.

Of all the symptoms that you experience because of your condition, which one to three symptoms have the most significant impact on your life? (Examples may include pain, bloating, constipation, vomiting)

Are there specific activities that are important to you but that you cannot do at all or as fully as you would like because of your condition? (Examples of activities may include sleeping through the night, daily hygiene)

How do your symptoms and their negative impacts affect your daily life on the best days? On the worst days?

How has your condition and its symptoms changed over time?

Do your symptoms come and go or are they ongoing? If so, do you know of anything that worsens your symptoms?

What worries you most about your condition?

Topic 2: Patients’ Perspectives on Current Approaches To Treating Functional GI Disorders

What are you currently doing to help treat your condition or its symptoms? (Examples may include prescription medicines, over-the-counter products, and other therapies including nondrug therapies such as diet modification.)

What specific symptoms do your treatments address?

How has your treatment regimen changed over time, and why?

How well does your current treatment regimen treat the most significant symptoms of your disease

How well do these treatments stop or slow the progression of your condition?

How well do these therapies improve your ability to do specific activities that are important to you in your daily life?

How well have these treatments worked for you as your condition has changed over time?

What are the most significant downsides to your current treatments, and how do they affect your daily life? (Examples of downsides may include bothersome side effects, going to the hospital for treatment, restrictions on driving, etc.)

Assuming there is no complete cure for your condition, what specific things would you look for in an ideal treatment for your condition?

2015 DDNC Public Policy Forum March 1st & 2nd in Washington, DC

REMINDER!!! Lobby on Capitol Hill for Digestive Tract Paralysis! The 2015 DDNC Public Policy Forum will be held on Sunday, March 1st and Monday, March 2nd in Washington, DC. Join patients, health care providers, industry representatives, lawmakers and their legislative staff for two days of educational programs, legislative updates and advocacy training. You will visit your State Representatives and Senators offices with information about Gastroparisis (GP) and other forms of Digestive Tract Paralysis’s (DTP) and what he or she can do to help.

Stipends for up to $500 MAY be available from the DDNC. For a stipend application, email

ddnc@g-pact.org. Stipends cannot be approved unless you are registered to attend at www.ddnc.org. Deadline for stipend applications is February 23rd.

Once you register, please email
ddnc@g-pact.org with your name, hometown and state, cell phone number and email address so we can be sure to include you in correspondence about the weekend and also insure we have enough packets for everyone. In addition, applicants for sponsorship grants must be associated with a DDNC member organization and be recommended by the DDNC Board member or an officer from the association to be represented. If you wanted to be considered for a stipend through G-PACT, you must contact us.

If you would like more information on this weekend, please email
ddnc@g-pact.org.

http://ddnc.org/About_DDNC_2.html