Honor Patient: Hannah

Continuing on with our Honor Patients, today hear from Hannah Setzer. Read below about how she has incorporated daily movement and exercise safely into her life, and what that means to her. My name is Hannah and I am totally feeding tube fed. I was born with a rare medical condition that affects my lymphaticContinue reading “Honor Patient: Hannah”

Becoming Positively Rachel

Writer Rachel Burchfield shares her story, and how she made the best out of a seemingly impossible situation. Five years ago, I was just your typical high school student. I swam competitively, volunteered and was a nanny for children with autism; with the hope of becoming a behavioral therapist. I had fallen in love withContinue reading “Becoming Positively Rachel”

Traveling with medical supplies

Recently, there has been a lot of talk in the online community about traveling with medical supplies, specifically TPN. If you use a feeding tube, TPN, or other medical supplies daily, the idea of traveling with them can be daunting. It’s a lot to think about, a lot to pack and organize, and so many whatContinue reading “Traveling with medical supplies”

Stomas and self-love

Gastroparesis can change our bodies in many ways. For some of us, that change can mean some form of a feeding tube. These changes can make us look at our bodies differently, and can also make us feel differently about our bodies. Pact Blog writer, Carolanne talks about her story with a feeding tube, and herContinue reading “Stomas and self-love”

Gastroparesis Acronyms

    As you navigate Facebook and the internet, you may come across a variety of unfamiliar terms related to Gastroparesis. Melissa Adams VanHouten, the ADMIN for several Gastroparesis groups and one of the co-authors of Real Life Diaries: Living with Gastroparesis, along with some additions from blogger Nancy Brown, has developed the following listContinue reading “Gastroparesis Acronyms”