PRESS RELEASE: #SubHealth to Review Patient Access to Investigational Drugs NEXT WEEK

9/29/17 PRESS RELEASE HEARING: #SubHealth to Review Patient Access to Investigational Drugs NEXT WEEK https://energycommerce.house.gov/news/press-release/hearing-subhealth-review-patient-access-investigational-drugs-next-week/ WASHINGTON, DC – The Subcommittee on Health, chaired by Rep. Michael C. Burgess, M.D. (R-TX), announced a hearing for Tuesday, October 3, 2017, at 10:15 a.m. in room 2322 of the Rayburn House Office Building. The hearing is entitled, “Examining Patient Access to … Continue reading PRESS RELEASE: #SubHealth to Review Patient Access to Investigational Drugs NEXT WEEK

The Question My Friend Asked That Gave Me Hope When I Was Struggling With Depression

This article is a re-post of one found on our partner's website, The Mighty. Written by Amanda D. in her super approachable, relateable style. You can see the original article by clicking here. SEPTEMBER 11, 2017 The Question My Friend Asked That Gave Me Hope When I Was Struggling With Depression I went to grab … Continue reading The Question My Friend Asked That Gave Me Hope When I Was Struggling With Depression

Guest: Rachel Burchfield on her hard choices about TPN

Hello Readers, Rachel Burchfield is a 21-year old who runs a blog called PositivelyRachel. There she covers multiple topics including her fight against her multiple chronic illness, one of which is gastroparesis. Rachel recently wrote an insightful article about the decisions she has had to make about how to get the nutrition she needs. It … Continue reading Guest: Rachel Burchfield on her hard choices about TPN

What is SIBO? by Nancy Brown

By Nancy Brown, 09/2017 What is SIBO? Small Intestinal Bacteria Overgrowth (SIBO) is a condition where there is excessive bacteria in the small intestine. The bacteria interfere with digestion and absorption. Similar to Gastroparesis (GP), SIBO can cause gas and bloating, diarrhea or constipation or both, and pain. SIBO symptoms vary patient to patient. Studies … Continue reading What is SIBO? by Nancy Brown

Patient Headlight: Lynn Wolfson – what she lost and what she gained

As we wrap up Digestive Tract Paralysis Awareness month we'd like to bring you one last Patient Headlight feature. These features have been about just a few of the many amazing people in our beautiful community who have shined their light brightly in the dark. Today we're talking about Lynn from Fort Lauderdale whose form … Continue reading Patient Headlight: Lynn Wolfson – what she lost and what she gained

Patient Headlight: Sarah Holloway – sharing her sight

During this awareness month, we'll continue sharing the stories of people who are having an impact on the community. We can't find all the heroes, but here's one, Sarah Holloway, who has learned a lot from her own struggles and the struggles of others. Sarah Holloway - Sharing her Sight by Jim Sliney Jr 8/25/17 Sarah … Continue reading Patient Headlight: Sarah Holloway – sharing her sight

I’m Proud of What I’ve Overcome as I Cope with Digestive Tract Paralysis

Hello PACTBLOG readers, Here, we'd like to share an article with you from our partners over at The Mighty. An article by a brave young woman named Allison. You can find the original article here. I’m Proud of What I’ve Overcome as I Cope With Digestive Tract Paralysis By Allison Healy Wheeling down the hallway, I … Continue reading I’m Proud of What I’ve Overcome as I Cope with Digestive Tract Paralysis