Hello PACTBLOG readers, Here, we'd like to share an article with you from our partners over at The Mighty. An article by a brave young woman named Allison. You can find the original article here. I’m Proud of What I’ve Overcome as I Cope With Digestive Tract Paralysis By Allison Healy Wheeling down the hallway, I … Continue reading I’m Proud of What I’ve Overcome as I Cope with Digestive Tract Paralysis
We're 3 weeks into Gastroparesis Awareness Month and we've got to tell you about Andrew Billeveau. This young man is the reason so many of you have pie stuck up your nose - he's the inventor of the Pie Face Challenge to raise GP awareness! 8/23/17 by Jim Sliney Jr In Lynn, Massachusets there … Continue reading Patient Headlight: Andrew Billeveau
August is DTP/Gastroparesis Awareness Month so we bring you a story from PatientsRising.org about the struggle of a young woman with DTP and how the specialist she went to see wasn't so special. See the complete article here: Lee Anne: Her DTP and how she got the brush off from a "specialist" Or read on... Lee … Continue reading Lee Anne: Her DTP and how she got the brush off from a “specialist”
You're not alone out there and neither is G-PACT. Whenever we can we work with others who can help raise awareness or improve the quality of life of our community. That's how we became friends with Mighty-Well. Mighty Well is on a mission to turn sickness into strength by transforming the patient experience. "As patients … Continue reading Meet “Mighty-Well”
8/16/17 Patient Headlights are a way we here at G-PACT can acknowledge heroes from the Gastroparesis community. Today we'd like you to meet Abigail Miller, a young woman who is learning how to live with her gastroparesis. Abigail Miller is from Pineville Louisiana and she has had gastroparesis since September of 2010. Well, that’s not … Continue reading Patient Headlight: Abigail the Visible
August is Digestive Tract Paralysis Awareness Month. During this month we’re going to be featured some stories from people who are influential or inspiring in our community. Today we’d like to share the story of Lucas Nagy and his mom Traci. He Most Certainly Would Have Starved by Jim Sliney Jr Traci Nagy is … Continue reading “He Most Certainly Would Have Starved” – the story of Lucas and Traci Nagy
TPN is a big part of life for many people with gastroparesis.
Happy TPN/HPN awareness week! This week, the OLEY foundation recognizes August 7-11 to help spread information and awareness of TPN/HPN. (TPN is sometimes called HPN, which stands for HOME Parenteral Nutrition. They’re considered the same thing). This week, I hope to share as much as I can about TPN, and where to find information and resources for those who are starting TPN, know someone who relies on it, or simply wants to know more.
Being on TPN at first, besides being scary, was isolating. I felt very different, and I wasn’t sure how to navigate my life. I started out being on TPN 12 hours a day. That meant if I wanted to go to a friends, out to dinner, out to a movie, or anything of the sort, I needed to go prepared. At first, the idea of being away from home during that time was daunting. All the…
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