G-PACT is pleased to announce that we are working on two initiatives for research through the Genetic Alliance.
Through the FDA Survey part of the Patient Focused Drug Development Program, we are collecting data for the FDA meeting being held May 11th. This survey will be available for completion until mid-July. We encourage all patients and caregivers with gastroparesis, GERD and/or IBS to complete this survey, which should be available shortly.
Once we have completed the FDA survey, we will introduce our new Registry. G-PACT has been chosen as one of only 15 organizations nationwide to work with Genetic Alliance to create a registry that will collect data to share with researchers. This registry will be more extensive than the survey for the FDA and will be the first comprehensive repository of gastroparesis information. We expect to be up and running in a few months, so watch for announcements. For more information, check out the Genetic Alliance press release: http://www.geneticalliance.org/sites/default/files/pressreleasearchive/03242015WhiteLabelAwardeesAnnouncement.pdf.
Updates on both the FDA Survey and the Registry will be posted on our Fan Page at https://www.facebook.com/GPACT.